Wednesday, October 20, 2010

Tea and things

Sometimes, I like to think that someone out there in Blog World is just sitting at the edge of her seat, biting her nails over what will become of the whole respite/hospital/home situation. I like to pretend that I'm interesting, sometimes...

But really, things move slowly. Today, George from the Bureau of Autism came to the house to do the SIB-R (an interview) about what I can and can't do, to see what services I need. It's funny how I can do some pretty complex things (provide a written report on an article from a technical journal, for example) but struggle with things like saying please, thank you, hello, goodbye, consistently and reliably. Mom's commentary: "That's the autism."

Reliable. That's my problem.

What I can do on a good day is so different than what I can do on a bad day. On good days I can definitely work. But then the bad days come, and I have to quit my job. So do I never work? It's not really fair to an employer to only be function 10 months out of the year, you know? Sigh.

In other news, Sister joined the junior board for Quality Services for the Autistic Community (or something like that) in NYC. She is also seeking to volunteer at the mental health ward at the hospital. Sister really tries. She's cool like that. I hope that I can take a page out of her book and do some volunteer now that I'm not really working.

I wanted to tell you that I have fallen in love with tea. Just regular, decaffeinated Lipton's, black tea. With milk and 1 1/2 big spoons of sugar (it's sweet, I know). It's delicious. I drink it multiple times a day, and it works just like a Klonopin. I swear. It calms me right down. So that's my new thing, tea. Now if my stepdad would stop yelling at me for slurping my tea, we'd be in good shape. Or if I could just get back in respite, where I could slurp as much as I want, and no one cares...


  1. you're my kind of girl. only i go for two big spoons of sugar.

    say it with me, God is good. all the time.

    still praying, my friend.

  2. What was the deal about respite? We need to catch up sometime, I'm wondering what's going on with you. Glad you found tea :)

  3. Always knew you were a closet Brit! LOL!! If in doubt, have a cup of tea - works every time. And if you've cut down on the diet soda that will help your mood as all those artificial sweeteners are depressants.

    Sending you happy thoughts as always (from the edge of my seat...I worry when I don't hear from you)

  4. Amanda, I have cut down! I'm down to 40 oz a day from... let me think... more than double that. I'm so excited! I'm also going to bed nice and early (9-10pm) and sleeping long (until 8-10am). Lots of sleep. Good stuff.

    My goal is to get down to 20 oz a day. Half a bottle when I wake up, and half later in the day. That would be grand.