tag:blogger.com,1999:blog-8102447705824989485.post3407008289841811836..comments2024-02-15T01:49:10.208-05:00Comments on Autistic Speaks: One idea for youLydiahttp://www.blogger.com/profile/08961164881093640787noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8102447705824989485.post-13237395052258380672011-03-09T23:11:34.767-05:002011-03-09T23:11:34.767-05:00Beautiful post. I wish they would have known about...Beautiful post. I wish they would have known about AS when I was a child. All I ever heard was that there was something "wrong" with me. No one ever knew what to do, they didint know what it was. So I had no help, just this overwhelming feeling that something was "wrong" with me. I was 29 when I finaly found out about Aspergers. I would have loved to have had a conversation like this, and I would love permission to repost this on the blog.Corabellehttps://www.blogger.com/profile/06432133467376630181noreply@blogger.comtag:blogger.com,1999:blog-8102447705824989485.post-66901285575730649112011-03-03T17:15:57.681-05:002011-03-03T17:15:57.681-05:00Lydia, I wasn't referring to a specific case, ...Lydia, I wasn't referring to a specific case, but to several instances that I've come across where parents are in some kind of deep denial about their child's current and future needs. They dread the diagnosis - whereas in fact it's the beginning of help and understanding for their kid. <br /><br />I think I might draw inspiration from your post, though - starting from the observation that everyone is different and ending with the remark that a diagnosis is not a bad thing. That living outside the box called "normal" brings joys as well as challenges.Anonymoushttps://www.blogger.com/profile/07338002014574933192noreply@blogger.comtag:blogger.com,1999:blog-8102447705824989485.post-15655505899607258732011-03-03T16:30:37.527-05:002011-03-03T16:30:37.527-05:00Honestly, I think you can mention it once, and tha...Honestly, I think you can mention it once, and that's about it. I have a very good friend who I am certain her son has Asperger's. I told her my thoughts, and about six months later when my mom met the boy and asked if he was on the spectrum, I relayed my mom's concern to my friend because I thought she should know. I will not bring it up again. It is entirely up to them what they do with their child.<br /><br />As for the words for that first time you mention it to them, I would need more information. Do they know what autism is? What signs is the child displaying? What are these parents like? Are they just clueless, or are they adament that nothing is wrong?Lydiahttps://www.blogger.com/profile/08961164881093640787noreply@blogger.comtag:blogger.com,1999:blog-8102447705824989485.post-5961617393528160282011-03-03T11:18:50.077-05:002011-03-03T11:18:50.077-05:00Very nice... what about parents who are in denial ...Very nice... what about parents who are in denial about their child? I've met several of them. How can I say to a parent that I think their child needs to be evaluated when they are insisting there's nothing wrong?<br /><br />I was fortunate - I happened to meet a therapist who took a close look at my then 22-month-old and started talking to me about brain damage. I cried all the way home, but IT MADE SENSE. I am eternally grateful for her bluntness, as early detection really helped us get her into the right environment to become the confident, outgoing young woman she now is.<br /><br />So how do I pay that forward? Give me some words.Anonymoushttps://www.blogger.com/profile/07338002014574933192noreply@blogger.comtag:blogger.com,1999:blog-8102447705824989485.post-27414200348617071222011-03-02T19:15:25.922-05:002011-03-02T19:15:25.922-05:00Lydia, this is an amazing dialog to talk to a chil...Lydia, this is an amazing dialog to talk to a child that is on the autism spectrum. I agree too at telling them as soon as they are able to comprehend. <br /><br />Well done!Chloes Mom Maryhttps://www.blogger.com/profile/16572230890939833964noreply@blogger.comtag:blogger.com,1999:blog-8102447705824989485.post-17970678158265597812011-03-02T18:46:28.097-05:002011-03-02T18:46:28.097-05:00This is wonderful - I love the way you have put th...This is wonderful - I love the way you have put this. I actually started this conversation with my son when he was seven and began asking questions that showed an awareness of himself in relation to other people. Before that he really had very little concept of social differences.<br /><br />We have done some work together using a book called "Asperger's: What Does It Mean to Me?" by Catherine Faherty. His dx is autism but the book also applies to anyone on the spectrum who can handle the content of the book.<br /><br />I think it's a very good point that writing things down can be processed much more easily by many people, and that's one of the reasons I use the book in addition to our ongoing conversations. I'm glad you mentioned it because we haven't done the book in a while, and I really should get it back out!Anonymousnoreply@blogger.com